Rare Disease Day

Rare Disease Day takes place on 29 February 2026, fittingly held on the rarest day of the year to spotlight the millions living with rare conditions. It champions better recognition, care and research.

When is Rare Disease Day?

Rare Disease Day is marked every February (February 29). It is one of the many UK awareness days that bring people together around a shared cause — see the full calendar.

Why Rare Disease Day matters

Although each rare condition affects few people, together they impact millions, often facing long waits for diagnosis and limited treatment. Awareness drives research, support and equity for patients and families. Explore disability inclusion volunteering.

How to get involved in Rare Disease Day

There are three simple ways to make Rare Disease Day count:

• Volunteer — offer your time to a rare disease charity or support group as a befriender or helper. Browse opportunities.
• Fundraise — host a fundraiser to support research and family support services.
• Raise awareness — share the stories of people living with rare conditions to boost understanding.

Rare Disease Day volunteering opportunities

Mark Rare Disease Day by doing something real. Find volunteering opportunities and start today.

Get involved with Rare Disease Day

Browse live opportunities, log your hours, and earn verified badges you can add to your CV and LinkedIn. Find volunteering roles or see more awareness days.